Pope Francis Praying For Charlie Gard And His Parents

Pope Francis Praying For Charlie Gard And His Parents

Charlie's distraught parents, Chris Gard and Connie Yates, had been trying to find a medical team that could look after him in a hospice for several days so that they could bid farewell to him just days before his first birthday, which is due on 4 August.

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The judge said that meant that Charlie, who has a rare genetic disease called mitochondrial depletion syndrome, should now be transferred to a hospice and have the ventilator that keeps him alive removed.

British and European judges allowed the doctors at Great Ormond Street Hospital, and not Charlie's own parents, to decide the conditions of even his final hours.

A UK High Court judge has ruled that Charlie should be moved from Great Ormond Street Hospital (GOSH) to a hospice, where he will "inevitably" die within a short period.

They say a hospice would be a better plan.

"We just want some peace with our son - no hospital, no lawyers, no courts, no media - just quality time with Charlie away from everything to say goodbye to him in the most loving way", Yates said. Charlie was the 16th person to ever be diagnosed with the disease, according to his parents.

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Earlier this year, Charlie's parents had launched an effort to provide their son with experimental treatment developed by a US -based medical specialist, after Charlie's doctors concluded that further medical intervention would be "futile" and prepared to remove him from life support.

At the end of January, Charlie's parents launched a GoFundMe page to raise money to bring Charlie to the United States for that treatment.

The statement said it had been a "distressing process for all concerned", adding that nobody could fault Charlie's parents for tirelessly advocating "for what they sincerely believed was right for their son".

Lawyers representing the couple on Wednesday told Mr Justice Francis about a change of heart.

A judge had given the parents until noon to reach an agreement with Great Ormond Street Hospital about spending more time in a hospice, but no compromise was reached so a judge ruled that Charlie's artificial ventilation should be turned off. They sought permission from the courts to switch off his life support and allow him to die peacefully.

After many months' delay, a US specialist was finally permitted to evaluate Charlie and informed the parents that their child would no longer benefit from the experimental treatment. The hospital and parents found themselves in court once again this week. We had the chance, but we weren't allowed to give you that chance. "They will be devastated they have not been granted their final wishes as parents".

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